One week from today, Valerie and I will be on a plane to Memphis for her next round of follow-up appointments.
Five years ago today, Craig and I sat in a small MRI waiting room for much longer than we expected. Our dear friend, Erich Richter walked by the glass windows and Craig went out to say hello. Erich sat down and knew something was going on since the nurse came out and told us that they were waiting for one of the doctors to come down to look at the scan. About 30 minutes later, we were taken back and shown a picture like this....
The left scan lights up the largest cyst white while looking down on her head, the right scan shows the tumor lit up white looking from the back of her head. (I don't have any more of the first scan, because we sent them out to other hospitals, but these are from 10/05, 9 months after 70% of the tumor and all of the cyst was removed, and regrew).
Erich then fought for us to be able to take our daughter home and not be admitted to the hospital. I believe the Lord had Erich there, to show us from the beginning that we did not have to sit back and take every word from the doctors as something we had no choice about. Just one of many things that helped us in choosing God's path in all of this rather than the world's.
Some people say "nothing could have prepared me for that day"....but I am so blessed to say, my God prepared me for that day. He prepared me through His Word which I was so deep in at the time. He prepared me so much during that special time with Him. He prepared me through relationships we had built over the previous years.
Count it all joy when you fall into various trials, knowing that the testing of your faith produces patience. But let patience have its perfect work, that you may be perfect and complete, lacking nothing. James 1:2-3
pictures after surgery - she had an incision from ear to ear like a headband (which the surgeon did without shaving any hair).
It wasn't always easy, and at times it seemed almost unbearable, but He sent people to love us (people we knew and people to this day that I have never met).
Weeping may endure for a night, But joy comes in the morning. Psalm 30:5
To the dad and daughter who brought a white angel bear to the hospital - you have no idea what your testimony meant to me, even receiving it second hand once I came back to the hospital after some much needed time with my other three girls. For a year I tried to find a way to contact you to thank you, but I trust that your reward is waiting for you.
I have saved every card, every gift, every email, wrote every verse that the Lord spoke to me on individual note cards (at the suggestion of my friend Kerry) and was blessed by a mother and daughter who sent me an enormous stack of verses they wrote on note cards for me.
Through all of this, my fleshy knowledge of what I thought I knew about faith, healing, health, and life have been eternally changed, for the better (though I still have lots to learn). I have learned to be careful about saying what we won't do, for the Lord has led us to do many things we thought we would never do. I believed five years ago, that the Lord wouldn't have wanted us to watch poisons be pumped into our child's bloodstream or squirted into her mouth. I believed He would never lead us to "microwave" her brain. I imagine some people who read our updates will not understand - I too didn't understand. I imagine some people reading our website will have some reason they are thinking of why our child was diagnosed with a brain tumor, and that's okay for I too thought I knew those things before five years ago, and I thought that our lifestyle would protect my children from things like brain tumors - after all, we didn't give vaccines, we ate organic food, we didn't use pesticides.
In October of 2005, we were told by one doctor that Valerie Grace most likely had a couple of months to live and would not be seeing much longer. We invited my Aunt Kathy to come and meet Valerie Grace
"My faith does not rest in the wisdom of men, but in the power of God."
1Corinthians 5:7
From January to March 2006, Valerie Grace went through three surgeries (going into her brain, but nothing like the first one). She sailed through a shunt surgery (getting home the same day) and a surgery for an ommaya reservoir (getting in and out the same day). And some how, through a not yet two year old, the Lord helped me get over my fear of hospitals.
From November 2005-March 2007, Valerie Grace went through almost weekly chemotherapy. She became quite used to the routine.
In 2007, the Lord called us to Ecuador - certainly throwing out all thoughts of practicality and comfort.
But my God shall supply all your need according to His riches in glory. Philippians 4:19
I have been humbled to see how He has used her visual impairments to open doors in ministering to people in Ecuador.
And we know that all things work together for good to those who love God, to those who are the called according to His purpose. Romans 8:28
His plans are so much bigger than we could ever imagine. Valerie Grace learned a new language and became like a daughter to the people we were sent to serve with.
So in Christ we who are many form one body, and each member belongs to all the others. Romans 12:5
At the end of 2008, Valerie went through two more months of IV chemo, handling it amazingly well.
Valerie laughing during IV chemo.
Then six weeks (30 days) of being sedated for radiation treatments.
Valerie Grace just walked in as I am typing this, saw this photo and said "That surely was the best day of my life"....this was taken the last week of radiation - she was minutes away from having a tube hooked up to her chest, propofol pumped into her veins to put her to sleep for about the 25th time in less than two months so that her body would be perfectly still as the radiation beams were targeting the tumor in her brain. She knew the routine all too well, and here she is smiling, holding Brooke's favorite manatee that she gave to Valerie Grace in the morning to help keep her company, with one of the many incredible nurses at St Jude.
This life is full of hard things. I believe it is only through a relationship with Jesus Christ that we can walk through something like this and see the blessings that have come out of it. We are forever changed by these past five years. I have been humbled by seeing what the Lord has done through the life of Valerie Grace.Our Lord had that all worked out in ways we could never have planned. I have been humbled to live on this side of a brain tumor. I still have so much to learn, but living on this side of things has helped me gain a new perspective on life, on the Lord - I cannot imagine walking this journey without Him. It is so possible to live and enjoy new life in Him despite circumstances. This place is not our home, but abundant, eternal life is available to everyone now.
I will greatly rejoice in the Lord. My soul shall be joyful in my God; For He has clothed me with the garments of salvation. Isaiah 61:10.
Our joy is not dependent on how comfortable life is, our joy is dependent on who we are. We we repent, accept the free gift of salvation and are buried through baptism and rise to live a new eternal life - we have every reason to rejoice no matter what life throws at us.
Rejoice in the Lord always. Again I say Rejoice! Let your gentleness be known to all men. The Lord is at hand. Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God; and the peace of God which surpasses all understanding will guard your hearts and minds through Christ Jesus.
Philippians 4:4-7
Thank you to each and every person who has visited us in the hospital, mailed gifts and cards to our four girls, called, emailed, and especially for your prayers. We are eternally grateful. For every short term mission team member who has been "the puppy's owner" for a week, we thank you. To every nurse, doctor, office staff member, and fellow parent who made this walk easier, we thank you. To the elders, pastors, and members of our home church, we thank you (you have no idea what that trip to our home meant to us all between the first MRI and surgery). To our friends we have meant since being in Ecuador, both Ecuadorian and American - we thank you. To friends who didn't know what to say, but stepped out and just came and hugged us and prayed - we thank you!
Celeste
For we brought nothing into this world, and it is certain we can carry nothing out. 1 Timothy6:7
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